Shayla's first week at home

Shayla has been at home for 4 days now and she is starting to adjust to life outside the hospital. One thing Lori and I keep saying is why didn't the nurses at the hospital give us an instruction manual? The first two nights were pretty tough. She likes to sleep all day and then stay up all night. Sleep was very hard to get...

On Monday night, we had to rush Shayla to the Emergency room because her temperature was low and she was having Tetrology spells. She was having labored breathing, turning blue around the mouth, and was sweating on the brow. The on-call pediatrician told us to go to the hospital and have a doctor take a look at her. After several hours of observation and consultation phone calls with the cardiologists at Texas Childrens Hospital, it was determined that she could go home. They explained that Shayla was experiencing Tetrology spells and we did the right thing bringing her to the hospital. We see the cardiologist tomorrow so hopefully we can get more info on what to look for and maybe we can find out when we can get the surgery. We'll update you all when we get more info.

Here are some pictures of Shayla's fist bath. Everyone told us that she would get really upset durring this process, but she handled it like a pro. Lori's parents also came into town on Tuesday. What a relief that was! We were finnaly able to get a little sleep. Yesterday we slept for 6 hours! We felt so refreshed. We'll get photos posted with Shayla and Grandma and Grandpa soon.

Check back soon for more photos and info...